Gastroschisis: Being Born Inside Out

Gastroschisis: Being Born Inside Out explains uncomplicated gastroschisis from the perspective of a child who underwent corrective surgery as a baby and is now living a healthy and fulfilling life. The story begins with proud parents becoming informed of their baby’s diagnosis during a routine prenatal ultrasound appointment. The narrator describes what gastroschisis is by recounting the explanation the surgeon gave his parents in simplified terms. Every step of the hospital journey is described in easy to understand language and vivid illustration – starting from the prenatal diagnosis, to birth, to surgery, and finally to postoperative care, to improve understanding and reduce fear.

This book is designed to help:

• Caregivers of a newborn with uncomplicated gastroschisis understand the anatomy and hospital course
  
  
• The patient when they grow up and want to understand where their scars came from (and why their belly button may look a little bit different)
  
  
• Family members, including young siblings who want to understand why their new brother or sister is or was in the hospital

The end of the book contains a ‘Facts’ section with important information and answers to commonly asked questions, as well as what to expect before and after surgery, to supplement conversations with doctors. A glossary of ‘Doctor’s Words’ is also included to provide helpful definitions of relevant medical terms in plain language, along with a page to take notes for your own hospital experience, if applicable.

Through science and colorful illustration, this book not only aims to empower patients and their families but is also an enjoyable and educational gift for kids who are curious to learn more about the fascinating world of medicine.

$1 from every copy of Gastroschisis: Being Born Inside Out sold will be donated to Avery's Angels, a non-profit organization dedicated to research, awareness, and support for patients and families affected by gastroschisis.