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Gastroschisis: Being Born Inside Out walks families through the journey of gastroschisis with honesty, warmth, and reassurance. Through relatable storytelling and engaging illustrations, children learn what it means to be “born inside out”—and how their care team helps them heal.
From pregnancy and diagnosis to NICU care and recovery, this book brings clarity to each step while celebrating resilience. It turns a scary experience into a story children can understand—and feel proud of.
The book covers:
• Prenatal diagnosis through ultrasound
• What gastroschisis is (intestines developing outside the belly)
• What happens at birth and immediate NICU care
• Medical equipment such as replogle tubes, ventilators, and IV nutrition (TPN)
• Use of a silo to gradually return intestines into the belly
• Surgical repair options, including sutureless and operative closure
• Recovery, feeding progression, and going home
• Variations in recovery, including complicated gastroschisis
• A glossary of ‘Doctor’s Words’ to provide helpful definitions of relevant medical terms in plain language
Designed for children and families, this book uses simple language and engaging illustrations to support understanding during a stressful time. It is also a helpful resource for hospitals and care teams introducing gastroschisis to patients and caregivers.