$15.00
Hirschsprung’s Disease: My Missing Rocket Launchers is a beautifully illustrated children’s book that transforms a difficult diagnosis into a story of courage, hope, and healing. Using imaginative rocket metaphors, it explains how some children are born without the “rocket launchers” (nerve cells) that push poop through the intestines — and how doctors act like rocket scientists to fix the problem with surgery.
Told with warmth and creativity, this story reassures children and families that they are not broken, but supported by a team of caring experts. With playful illustrations, empowering messages, and relatable analogies, the book helps kids feel brave and understood while giving parents and caregivers comfort and encouragement during a challenging journey.
The book covers:
· What HD is — missing ganglion cells (the “rocket launchers”) in the colon.
· How it is diagnosed (X-rays, contrast enemas, rectal suction biopsy).
· Treatment options, including pull-through surgery and temporary ostomies.
· Home care for parents, such as bowel irrigations and anal dilatations.
· The importance of recognizing and treating enterocolitis quickly.
· Long-term expectations, from recovery to potty training and beyond.
The book blends medical accuracy with kid-friendly storytelling, offering guidance not just for children with HD but also for their parents, siblings, and caregivers. Expertly reviewed by pediatric surgeons and specialists, it provides reliable information while creating comfort and understanding for families navigating life with Hirschsprung’s Disease.
At this time, this book is available to purchase for bulk orders only, through on-demand printing.