Cystic Fibrosis: Wacky Juice Machines, guides readers through a story about Cystic Fibrosis (CF) that answers many questions about this complex condition, including: What is it? How do you get it? What does it do? How do you treat it? The story uses an analogy that compares your body to a juice machine and is written in easy to understand language with vibrant illustration to ensure it is comprehensive while being fun, comforting, and hopeful. The story was presented to caregivers of children with CF, and received great feedback:
"I love the book! [It]...touches on so many different aspects of CF without getting too complicated. It gives others a better picture of what CF means. You wouldn't believe how many times I've had to explain to others that my son won't just grow out of it, or that when he coughs excessively from a lingering cold that it's just part of the journey. I'm just thinking that this will be a good book to share with his teachers and others he will encounter to better explain what [he] deals with daily. Also, as a teacher, I am a sucker for a good book with lots of text features. I think the labels on the pictures are so good! Kids have so many questions and the pictures are simplistic enough for them and they can learn from them as well as the labels on the text. The drawings are fun and accurate in helping kids relate! Great job!" —S.M.
"I really love the bright colors and the child like art (please know that was meant as a compliment!!). It is super easy to understand, and you touched on many different parts of CF without over complicating it. It doesn't seem like it would make the CFer feel odd or different in a bad way. Honestly, I would want to read this if my child was recently diagnosed. GREAT JOB!!" —M.S.
To supplement conversations with medical professionals, important information is included in a 'Facts' section, along with a glossary of 'Doctor Words' with relevant medical terms explained in plain language. Additional special sections describe common CF symptoms, airway clearance therapies, nutritional facts and tips, and provide a comprehensive list of the doctors and other medical specialists that work with CF patients.
Through science and colorful illustration, this book not only aims to empower patients and their families but is also an enjoyable and educational gift for kids who are curious to learn more about the fascinating world of medicine.
“Our CF Team recently had the opportunity to work with Dr. Baimas-George as she created the children’s book related to Cystic Fibrosis. The analogy she uses to discuss CF is perfect and really normalizes the disease for children. It is also described in a way that makes a complicated disease easier to understand for patients, providers, families, and friends! We have started providing a copy of this book to some of our families and we have received very positive feedback!” ––Kendra Blevins, MSN, RN, CPN; Cystic Fibrosis Nurse Navigator; Pediatric Pulmonology, Atrium Health Levine Children’s Hospital
“We purchased a bulk amount of the “Wacky Juice Machines” book for our Cystic Fibrosis clinic. It has been an incredible resource. The analogy makes a very difficult disease much easier to understand. It’s a great tool for young patients, siblings, and even parents who have a newly diagnosed child and are overwhelmed by all the information to learn. Our patients love that they can have a children’s book about Cystic Fibrosis and feel a little less alone.” ––Beth Jorgensen, MSW, LCSW; Levine Children’s Specialty Center
Thank you to the Pediatric Pulmonary Medicine team at Atrium Health Levine Children’s Hospital, and to the Charlotte Family Advisory Board (a group of parents, caregivers, and patients), for their support.
This book was originally created with the support of Atrium Health.